Severe M.E. Day Australia
Raising awareness of severe and very severe ME/CFS in Australia
Severe M.E. Day is on August 8th, and is a day of awareness and visibility for those people living with severe Myalgic Encephalomyelitis (M.E.). Severe M.E. Day is also referred to as ‘Severe M.E. Awareness Day’.
Severe ME/CFS
Severe forms of Myalgic Encephalomyelitis (M.E.) are devastating and life destroying. The majority of people with severe M.E. are unable to work, have limited to no capacity to socialise or travel, and may require support from a carer or support workers for managing even basic tasks of daily life.
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Prevalence
There are many people in Australia living with ME/CFS, with estimates of up to 25% having severe M.E. The estimated prevalence of ME/CFS in Australia is between 0.4% (104,000) and 1.0% (260,000) of the population. About 25% of these (between 26,000 and 65,000 Australians) will be in the severe category.
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ICC
The International Consensus Criteria for Myalgic Encephalomyelitis (M.E.) was published in 2011, and serves to identify the unique and distinctive characteristic patterns of symptom clusters of M.E. The ICC Primer was published in 2012 to provide clinicians with a one-stop, user-friendly reference for M.E.
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Read stories
Read stories and experiences of Australians living with severe and very severe ME/CFS.
Share your own story
By sharing your personal experience, you can help increase awareness about severe ME/CFS and help bring about a better understanding of how seriously debilitating this illness can be.
Our supporters - Australian ME/CFS charities
Severe M.E. Day Australia is supported by these registered charities and not-for-profit organisations.
ME/CFS and Lyme Association of WA Inc.
ME/CFS Australia Ltd.
ME/CFS South Australia Inc.
ME/CFS/FM Support Association Qld Inc.
Bridges and Pathways Institute Inc.
Our supporters - Other Australian organisations
Severe M.E. Day Australia is supported by these organisations.
National Centre for Neuroimmunology and Emerging Diseases (NCNED)
Make a donation
Support Severe M.E. Awareness Day Australia by making a generous donation.
