Story 3: Suzie

Suzie
Individual living with severe ME/CFS
Western Australia

“I am at my worst in 26 years?, aged 70, pensioner. I applied to my aged care to have help with housework a month ago. I have been assessed and deemed eligible. However, no company will acommodate my need for wearing no perfumes. So I am just living in a dirty home without help.

My life has been so tiny.  I feel as if my life has been stolen. So Isolated, in so much pain; no family to understand or give support except one son struggling with much the same condition. There just is no help in the medical community to understand the need to not wear perfumes. I have been reduced to having my Doctor’s appointment in the car park due to chronic overuse of disinfectants and hand sanitisers and perfumes.”

Story provided by Suzie on 11 July 2021. Published with permission.

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